About Arthrogryposis
Jetson was born with some problems with his limbs. After a few days of tests they have named his condition as Arthrogryposis, which basically means that he has multiple contractures or stiff joints and muscles. He did not fit all the classic signs of Arthrogryposis, though it is just a general label for children born with a range of problems with many possible causes. They may never know why Jetson was born this way. He seems to have got himself caught in a bad position in the womb, and either did not have the muscle strength to move out of it or the room to move.
Check out this nice little video explaining simply what Arthrogryposis is.
Medical Websites
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http://www.patient.co.uk/doctor/Arthrogryposis-Multiplex-Congenita.htm a comprehensive and clearly written medical synopsis of arthrogryposis.
Information and Support Groups
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For more information about Arthrogryposis, see this Australian support group site: www.taag.org.au/arthrogryosis.php
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The US athrogryposis (AMC) support group has an excellent forum and is a great source of information: http://www.amcsupport.org/
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Here is a medical description of amyoplasia: www.healthline.com/galecontent/amyoplasia
Articles of Interest
- Dieterich, K, Kimber, E, Hall, JG. Central nervous system involvement in arthrogryposis multiplex congenita: Overview of causes, diagnosis, and care. Am J Med Genet Part C. 2019; 1– 9.
- Kazuteru Doi, MD, PhD; Yuichiro Arakawa, MD; Yasunori Hattori, MD, PhD; Amresh S. Baliarsing, MD, Restoration of Elbow Flexion with Functioning Free Muscle Transfer in Arthrogryposis: A Report of Two Cases, The Journal of Bone & Joint Surgery. 2011; 93:e105 1-7
- Transfer of pectoralis major in arthrogryposis to restore elbow flexion
DETERIORATING RESULTS IN THE LONG TERM
O. Lahoti, MS(Orth), Dip.N.B, FRCS(Orth), FRCSC, Consultant Orthopaedic Surgeon; and M. J. Bell, FRCS, Consultant Orthopaedic Surgeon - Arguments for a neuroorthopaedic strategy in upper limb arthrogryposis - a case study by Jörg Bahm. published in the Journal of Brachial Plexus and Peripheral Nerve Injury 2013, 8:9
- Feldman D, et al. Improving knee range of motion in arthrogrypotic knee. Presented at: Limb Lengthening and Reconstruction Society Annual Scientific Meeting; July 13-14, 2018; San Francisco.